Monthly Archives: June 2006

You know when I was first diagnosed, the doctors said my life expectancy was 10 years. Last Friday I celebrated my Twentieth year on this planet! I’m quite excited to be here now, I feel like now is the start of an even bigger adventure, one which I’m going to try and do my best to share with you. I know I am not very up-to-date with my blog but I am honestly going to try and amend this. The problem is at the moment my bedroom is in the attic and it’s reaching stuffy highs of 26°C. Inevitably I had a nosebleed at 4:40 AM yesterday, it was over by 6 though. It was just getting up that early was really unnerving, I calculate I was awake for around 21 hours yesterday! I’ve also missed my HGB check-up because my mum has been really busy. I’m going on Friday however, so maybe that’ll work out better if I need a blood transfusion earlier on in the week. I was on antibiotics again last week, my finger broke out with an infection, you know the culprit! I’m worried though as the finger and thumb next to the old infected one (it’s stil clearing up) have faint yellowish marks as if something’s bubbling under the surface, which is how my infection started before. Well, if it does I can just go on antibiotics straight away as I’ve got at least 5 days worth left over.


Today’s the day before my twentieth birthday, it’s quite a huge day for me which is why I was so nervous about it. I say was, I aren’t so much now. I’ve sort of just realised that it’s only a number after nineteen, it’s not that much different. I am still a little bit unsure of what to make of it all, but I guess I won’t know ’til I get there. If I’m like this now, think what I’ll be like at 21! Why is so much emphasis put on 21? Ugh, let’s not think about that yet. I’m just going to enjoy the ride I suppose. Though it’s not so much of a ride then it is a very slow carousel, with donkey’s instead of horses!